Patient Reported Outcome (PRO) Study
In addition to the somatic outcomes that have been continuously recorded in the SWEET Initiative database since 2013, we now offer our members the opportunity to assess key parameters of the subjective experience of living with type 1 diabetes – Patient Reported Outcome Measures. The measures are standardized, validated, patient-completed questionnaires (PAID-T and KIDSCREEN) that reflect patients' perceptions of their health status, perceived level of impairment, disability and health-related quality of life, and their assessment of their experience of diabetes care. Both are important determinants of health-related quality of life and patient preferences, and therefore important complements to risk factors for acute and long-term complications.
We already have a good number of translations and initial ethical approvals from partner centers. So, we hope to start very soon and gradually integrate more and more members.
